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khogan1960

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khogan1960  

crohn's disease, HELP FOR THE UNINSURED: It has been awhile since I made a post on Aidpage. We are still

It has been awhile since I made a post on Aidpage. We are still battling the disability system in trying to get Zach's disability approved. I took him to the doctor last week and the doctor said that if the Crohn's Disease does not greatly shorten his life span, the treatment will. If anyone knows of any resources where he can see a specialist near Birmingham, AL with no healthcare insurance, please share your information with me. Thank you.
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khogan1960   in reply to khogan1960   on

Crohn's Disease

 in response to CATLUV...   He has applied for SSI Benefits in Alabama. He was 19 years old when he was diagnosed with Crohn's Disease so he was not considered a dependent to get disability benefits on my or my husband's contributions while working. We have been praying and waiting for almost four years and as of right now, his benefits have not been approved. We have representatives in Washington, D.C. contacting Social Security and writing them letters, but they always get the same answer - The Social Security Department is backlogged and if you do not receive a decision within the next 60-90 days, you are welcome to send another letter to check the status of his application. Being backlogged is a good excuse if his application was filed just a year ago, but four years seems a little extreme. If anyone knows anybody that might be able to help us get his application approved, please tell them to do everything they can. If they need more information, they are welcome to email me at raggedjean5@yahoo.com. Thank you for the information and for your concern. God bless you.

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khogan1960  

Crohn's Disease

Zach, my 22 year old son who has Crohn's Disease, needs financial assistance for medical treatment and purchase of medications. He lives with me, I am disabled and he has no health insurance. Right now, he is receiving minimum medical mangement and can only purchase the lower cost prescriptions with which he still has flares resulting in visits to the emergency room (1-2 times a month, sometimes more). We have been told that there are better doctors and better medications which we cannot afford. Zach has a goal of becoming a Youth Minister when he gets his disease controlled or possibly in remission. He has a notebook where he writes down things he wants to promote in the Youth Ministry (ex,: spiritual involvement of youth, respect for humanity and animals, service to those in need, etc.). He has several avenues that can be used to help him get better medical care. Donations can be made through Paypal using email: dhogan64@yahoo.com. If you do not want to use Paypal or have just $1.00 to spare, you can put it in an envelope and address it to him: Zach Hogan P.O. Box 223 Warrior, AL 35180. If you have a group, organization or business that would like to help, go to http://www.crazygood.com/refer/killerwolf549. Your website can be promoted for $10.00 per month. Part of the $10.00 will be used to help Zach, so you will help him and gain a service at the same time. You can pay for one month or more, it will be your decision and all your information will be kept confidential.

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khogan1960   in reply to khogan1960   on

khogan 1960

 in response to Starshine...   I have tried and tried to find help. All the places say they are overwhelmed with the number of people in need and it is first come, first served. So far, I have not made it into the "first come" group. Some of them say they will be able to offer more people assistance after 1/1/2011.
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khogan1960   in reply to khogan1960   on

khogan 1960

 in response to Starshine...   Thank you so much for your caring and nice wishes. It is Thanksgiving Day and our meal will be Hot Pockets because after I bought Zach's medicine yesterday, I had no money for a Turkey dinner. I try to buy foods that are not spicey and have no onions or peppers because if he eats something like that, he will get sick. No doctors want to see him because he has no health insurance. There is a Mayo Clinic in Jacksonville, FL and I knew I might be able to get him there without alot of money since we live near Birmingham, AL. I called and asked them what you would need to do to see a doctor there. They said since he has no health insurance, I would need to pay $4,000.00 for him to even walk through the entrance. I have been shocked about the way doctors are treating patients in the United States with the economy being so bad. I owed my primary care doctor $500.00 which most of the expense was for him coming by the room when I was in the hospital last year. All he did was walk in the room, say hello and asked how I was feeling. I thought that was charged in the hospital bill, but then I was told that most of the primary doctors do not work for the hospital so they bill their hospital visits as "outpatient". When I went to his office last week just to pick-up a prescription, I was taken to one of the exam rooms and told that if I did not pay at least $50.00 on that bill that I would not be able to even get a prescription from them "not that day and not until the bill was paid". That is sort of cruel since they know your situation. I had planned every month to send them some money, but something always happens unexpectedly and I did not have the money. I had $61.00 to my name that day, so I walked out with my prescription and $11.00. The only good thing is that I got my prescription filled for $2.50 and then came home, had a nervous breakdown and had to stay in the house and survive on whatever we had. I can't understand why a doctor who is supposed to be treating you can consciously do somebody like that. I am sorry I have not responded to you earlier, but my phone gets disconnected alot and all I can get is a dial-up connection. Hope I did not put a dark cloud on your Thanksgiving. I hope you are having a great day.
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khogan1960   in reply to khogan1960   on

khogan 1960

 in response to Starshine...   I wish I could give you better news, but due to the weather going from hot to cold in 24 hours in Alabama, my chest is killing me. I spent all day Tuesday in the emergency room with Zach because he had a major flare that none of his medications he had at home would help. They gave him IV liquids, pain medications and nausea medications until he started feeling better and then sent him home. He has been 2-3 flares a month and some of them he does not have to go to the emerhency room but it seems like they are getting worse and I can't find a doctor who acts like they might have a small amount of time to try and find out what is going on. Hope you are doing well, Karla.
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khogan1960   in reply to Debi1214   on

About Debi1214

 in response to Debi1214...   I would check into other states like Tennessee.  I have been thinking today that I should check into Tennessee also.  Alabama is not such a great state to live in.  I am 50 years old so I know what you mean about age.  I worked full-time with plenty of overtime, raised 3 children and made sure that they went where they wanted to go in the evenings (dance lessons, piano lessons, marching band, etc.), did laundry, cleaned house, cooked a full meal every Sunday and did the yard work.  Now, I am sometimes lucky to get out of bed.  They had to remove four left ribs during my cancer surgery and my body does not have any support so I have spells where I fall and it is embarrassing when people see you fall and want to help.  I just get up and tell them I'm alright even though blood my be coming out both knees, etc.  I think I am very inadequate as a person now but I can't change what happened.  Good luck and unless you just don't want to leave South Carolina, I would check with some other states.  It's strange but there are some counties in Alabama that say they have already used all the money they had for this year to help people with electric bills, etc. but last month our electricity was going to be disconnected within 24 hours and I called the Community Action office in the county where I live and the lady told me to come in the next day and they helped pay my electric bill.  I was so shocked and relieved at the same time.  Don't stop trying to find somewhere better to live, especially expecting to be homeless any day.  When we lost our home, we lived in a camper for about six months.  So, find somewhere now.  The first seven days after we lost our home, we lived in the truck.  It was not fun, I thouight I was going to have a nervous breakdown but we survived but I would not want anyone else to go through that.  Good luck and God bless you.
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khogan1960   in reply to Debi1214   on

About Debi1214

I wish I knew what to tell you.  I am disabled due to extensive cancer surgery and my 22 year old son is disabled due to Crohn's Disease.  There are times when we are both in pain and do not feel good so we just do the best we can.  My son filed for SSI benefits in 1/2007.  He had a hearing in 4/2009 and was denied benefits.  I got a copy of the transcript where the judge listed the reasons he was denied.  I was in the room during the hearing with my son and I know what was said by my son and the judge.  The reasons for denial were lies.  The judge said that my son had a girlfriend and that they went out on dates to movies and to Church and out to eat every week.  My son has not had a girlfriend since 2006.  He has not left the house during the past two years except to go to the doctor.  He is undergoing a capsule endoscopy on Tuesday 7/13/2010 for further evaluation.  I almost started crying in Walgreen's a couple hours ago when I went to get the prep for this test and they said it was $60.00.  His SSI has still not been approved and he has no health insurance.  I have been in the emergency room almost every weekend with him for over eight weeks.  His medications have done me in this month.  Today is 7/11/2010 and I only have $70.00 left to get me through the rest of the month.  I guess I might have to go stand in parking lots and beg for help by the end of the week.  I have been told that the State of Tennessee is very helpful to people relocating there,  I am going to check into it.  Alabama used to have plenty of government apartments available but I don't know if they do now since so many homes have been foreclosed.  We lost our home to foreclosure in 11/2007.  I wish you luck and will pray for you and everyone in the United States.  If something does not change in this couintry, I don't know what any of us are going to do.

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khogan1960   in reply to khogan1960   on

Update On Zach and Crohn's Disease

 in response to Anonymous40784...   Thank you for your prayer,  You have been on Aidpage a long time also.  I think you were one of the first people to respond to my first post.  Thank you and God bless you.
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khogan1960   in reply to khogan1960   on

Update On Zach and Crohn's Disease

 in response to Starshine...   Thank you for your reply and concern.  Prayers are always welcome.
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khogan1960   in reply to removed   on

How Are You Doing?

 in response to susie's son...   

Thank you so much for your reply.  You can definitely put him on the prayer chain at your Church.  God bless you.

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khogan1960  

Update On Zach and Crohn's Disease

This is a photo of Zach and his best friend Morris (the cat).  I was just noticing that I have been posting to this site since 2007.  Time passes fast and we have survived many bad times so far, the most devastating was the foreclosure of our home, but at least Zach is still hanging on and that is alot more important than losing a house.  It is becoming harder to find doctors to treat Zach since he has no health insurance and the talk of healthcare reform has all the doctors running scared.  I guess they are afraid treating someone with no insurance or money will affect their bottom line.  Zach is supposed to swallow a capsule Monday, 7/12/2010, that will take pictures of his intestines and colon to try and find out what is going on.  I hope they can find the problem and have a way to fix whatever is wrong.  Zach tries to think positive and talks about forming a special youth ministry when he gets his health problems under control.  He has not been out of the house during the past two years except to go to the doctor.  Please pray for him and if you know anyone who might be able to help him, please let us know.

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khogan1960   in reply to removed   on

How Are You Doing?

My family's prayers will be with you.  Others are praying for my 22 year old son who has Crohn's Disease.  He was diagnosed with the disease when he was 19 years old.  I know prayer has gotten us this far.  Zach has not been out of the house during the past two years except to go to the doctor.  He is very religious and talks about how he wants to start a special youth ministry when he gets his health problems under control.  Zach is going to the doctor Monday, 7/12/2010 to swallow a camera so they can try to see what is going on.  With all the healthcare reform talk, we are having a hard time finding doctors who will treat him since he has no health insurance.  There has to be a new day coming for this world.  People working for the doctors are driven by whether you have health insurance or cash to hand them. What happened to caring and compassion?

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khogan1960  

Crohn's Disease - Update on Zach

We are in the emergency room at The University of Alabama at Birmingham.  Zach started passing blood in his stool.  We have been here since 7:12 P.M. on 5/28/2010.  It is now 4:47 A.M. on 5/29/2010.  They have done some x-rays and bloodwork.  We still do not know what is going on.  If you can help with medical bills, please go to "Wish Upon A Hero" website to make post.

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khogan1960  

Everyone Needs To Come Together

We were created to have a relationship with God, but we turned our back on Him and our friendship with God was broken.

Jesus Christ came to die for us and restore our relationship with God. He said, "I am the only way to God."

We receive Christ by personal invitation. Jesus says, "I stand at the door and knock. If anyone hears My voice and opens the door, I will come in."
Revelation 3:20


Prayer of Salvation

Prayer is simply talking to God. Pray this prayer and you can know Jesus personally and be assured you will live with Him for all eternity.

Lord Jesus, I want to know you personally. Thank You for dying on the cross for my sins. I open the door of my life and invite you to come in. Thank You for forgiving me of my sins and giving me eternal life. I give you control of my life. Help me to remember that life is all about knowing You. Amen

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khogan1960   in reply to khogan1960   on

Medical Help for Uninsured

 in response to Starshine...   Thanks for the information.
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khogan1960   in reply to khogan1960   on

Medical Help for Uninsured

 in response to Starshine...   It is so sad that there is so much pain and suffering in this world.  Thank you for forgiving me for my sarcastic remarks I made to Ralph that day.  He is a really good guy just trying to keep going like the rest of us.  One thing I found out this week is that there is no charity healthcare in Birmingham, AL.  My son saw a gastroenterologist Monday (5/24/2010) and I had to pay $35.00.  He saw a podiatrist on Tuesday (5/25/2010) and I had to pay $60.00.  He underwent a colonoscopy today Thursday (5/27/2010) and I had to pay $35.00.  The doctor said they saw no obvious bleeding in his colon and they did do biopsies and the results of the biopsies will not be ready until 7-10 days.  All these things were done at the University of Alabama at Birmingham which charity care there used to mean you paid $0.  I know in the big world of medicine these fees are very minimal to them but they are devastating when you are using your rent and utility bill money to pay for these things.  These expenses also do not include the previous two doctor visits and almost $200.00 paid for medications two weeks ago.  I have posted a wish on the "Wish Upon a Hero" website under the user name raggedjean5.  I am asking for donations to recover some of this money so I can pay rent and utilities.  If anyone knows of anybody who can help, please ask them to go to that web page. I will do anything to make sure my son gets the healthcare he needs, even if I have to stand on the side of the road and beg for help. Thank you.
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khogan1960   in reply to khogan1960   on

Medical Help for Uninsured

 in response to Starshine...   I am so sorry about your girlfriend's daughter.  It is so sad that with the test that would have detected her problem earlier was not done (as they did not do a CT scan).  I have a weakened immune system because of the mesh.  I break out in shingles when I get upset which is often lately in trying to find care for my son.  I developed a staph infection in 11/2009 and had to stay in the hospital for 7 days with them hanging bottles of antibiotics continuosly with the IV and sometimes it would be 3 different antibiotics at one time because they said if the infection got into the mesh, I would not live.  I have had doctors look at me in disbelief not understanding how I am still alive.  I joke with them that "I am just too stupid to die".  There should be someway and I don't know how right now that would make doctors sit up and care and at least run a test.  They seem to all be in it for the money and I hope God finds a doctor for my son before it is too late.  The doctors said that the tumor I had was composed of "tentacles" that were wrapped around the parts of my body they had to remove.  They said chemo and radiation usually did not help with that type tumor.  I may possibly have a recurrence in my right chest wall right now, but if I do, the doctors say they will not be able to do anything.  During the night, I feel a squeezing in my chest and think I am dreaming but wake up and the squeezing is there and I have to take some pain medicine and hope I can lay back down.  I have spent many nights sitting in a recliner crying and praying.  I will check out your blog.  I know you were upset about my response to Ralph and I apologize.  I was just stressed out and trying to take care of other people when I am sick too. 
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khogan1960   in reply to khogan1960   on

khogan 1960

 in response to RALPH7...   I will check it out.  Thank you,
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khogan1960   in reply to khogan1960   on

Medical Help for Uninsured

 in response to RALPH7...   God bless you
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